Dec 2, 2009

Posted by in Journal | 17 Comments

Before and After

Before and After

This was me before demyelination

This is me now after demyelination


Here are some other links on demyelination

Before and After
Before and After
Myelin Repair Foundation


  • Chris T

    Keep up with the exercises I taught you Rob.

    By the way, very nice new website you made.
    Awesome.

    ,Chris T

  • Chris T

    Keep up with the exercises I taught you Rob.

    By the way, very nice new website you made.
    Awesome.

    ,Chris T

  • christyann54

    I would like to know what kind of MS you have — PPMS? … and how long you have had it.

  • http://www.demyelination.net Rob

    I do not have MS. I have general demyelination. Its not even categorized as a disease. It was rapidly debilitating, but now the demyelination has stopped and its just a matter of remyelination. Thats why I created this website to network and journal my progress and share what I've learned.

  • Anonymous

    I would like to know what kind of MS you have — PPMS? … and how long you have had it.

    • http://www.demyelination.net Rob

      I do not have MS. I have general demyelination. Its not even categorized as a disease. It was rapidly debilitating, but now the demyelination has stopped and its just a matter of remyelination. Thats why I created this website to network and journal my progress and share what I’ve learned.

      • Anonymous

        ‘Sorry … have MS on the brain (literally). — ‘Guess I slipped a gear. — ‘Will read more and comment less!

        All the best!

        • http://www.demyelination.net Rob

          No problem. I want more interaction on this site anyway.

        • http://www.demyelination.net Rob

          Why are you interessted in demyelination? Do you or someone you know have MS?
          Join http://demyelination.net/discussion/ to share your story or ask questions.

  • christyann54

    'Sorry … have MS on the brain (literally). — 'Guess I slipped a gear. — 'Will read more and comment less!

    All the best!

  • http://www.demyelination.net Rob

    No problem. I want more interaction on this site anyway.

  • http://www.demyelination.net Rob

    Why are you interessted in demyelination? Do you or someone you know have MS?
    Join http://demyelination.net/discussion/ to share your story or ask questions.

  • christyann54

    I became interested in demyelination because I have MS (Relapsing and Remitting MS, diagnosed 2008). — I'm pretty sure I have more holes than places where the myelin is still connected on my brain as per my MRIs! — The MS has really taken a toll on my brain as I have a rough time finding the words I am looking for sometimes and often cannot remember what I have just read … although I might remember after a several minutes (or an hour!). — Drives me nuts! — But … at least it is not effecting my optic nerve – yet. (I cannot begin to tell you how challenging social networking is! — More offshoots everyday — for me, it's just getting overwhelming and confusing!) ~ As a detail person I am frustrated — especially since it would be good to be firing on all cylinders to try to navigate all the scientific information that suddenly has become the mainstay of my existence. – All of this is really an amazing puzzle. – I am struck by the wide-ranging possibilities for so many people with all kinds of diseases.
    Anyway … I am looking forward to reading your blog as it is actually more useful to be looking at the same sort of thing from different perspectives. Your odessey and immediate necessity for finding a solution is quite different from how MS is handled — for now.
    Your mention of hormones is interesting especially since in my reading progesterone is the order of the day! –but, as you said, your personal tests pointed to a need to balance what was happening to you with testoterone. ~ And you got results!
    I have been taking D3 supplements for close to a year, too, and have had very positive results. —And, of course, we are dealing with trying to mitigate inflammation. — 'Seems to be the culprit in disease. (I try to remember that getting upset at some crazy driver is just destroying my innerds!)

    Do you ever read Dr. Ray Peat's articles? — If you haven't. He's interesting. ~ A naturopath, academic. — He has some ideas about MS (his site is about all disease) that, I feel, make sense. — Lots of common threads with other diseases.
    Well … better sign off. — Have a good weekend! — You know … I really think we are on the verge of something huge. — I really think you will be surfing again and I will remain standing … and maybe all of this will be a memory I won't mind not recalling.

    All the best!

    Chris

  • Anonymous

    I became interested in demyelination because I have MS (Relapsing and Remitting MS, diagnosed 2008). — I’m pretty sure I have more holes than places where the myelin is still connected on my brain as per my MRIs! — The MS has really taken a toll on my brain as I have a rough time finding the words I am looking for sometimes and often cannot remember what I have just read … although I might remember after a several minutes (or an hour!). — Drives me nuts! — But … at least it is not effecting my optic nerve – yet. (I cannot begin to tell you how challenging social networking is! — More offshoots everyday — for me, it’s just getting overwhelming and confusing!) ~ As a detail person I am frustrated — especially since it would be good to be firing on all cylinders to try to navigate all the scientific information that suddenly has become the mainstay of my existence. – All of this is really an amazing puzzle. – I am struck by the wide-ranging possibilities for so many people with all kinds of diseases.
    Anyway … I am looking forward to reading your blog as it is actually more useful to be looking at the same sort of thing from different perspectives. Your odessey and immediate necessity for finding a solution is quite different from how MS is handled — for now.
    Your mention of hormones is interesting especially since in my reading progesterone is the order of the day! –but, as you said, your personal tests pointed to a need to balance what was happening to you with testoterone. ~ And you got results!
    I have been taking D3 supplements for close to a year, too, and have had very positive results. —And, of course, we are dealing with trying to mitigate inflammation. — ‘Seems to be the culprit in disease. (I try to remember that getting upset at some crazy driver is just destroying my innerds!)

    Do you ever read Dr. Ray Peat’s articles? — If you haven’t. He’s interesting. ~ A naturopath, academic. — He has some ideas about MS (his site is about all disease) that, I feel, make sense. — Lots of common threads with other diseases.
    Well … better sign off. — Have a good weekend! — You know … I really think we are on the verge of something huge. — I really think you will be surfing again and I will remain standing … and maybe all of this will be a memory I won’t mind not recalling.

    All the best!

    Chris

    • http://www.demyelination.net Rob

      I hope you like the site and my story gives you some inspiration.
      Its nice to compare how demyelination has affected other peoples lives too.
      I hope you will share more of your story here. I wish you the best of luck.

  • http://www.demyelination.net Rob

    I hope you like the site and my story gives you some inspiration.
    Its nice to compare how demyelination has affected other peoples lives too.
    I hope you will share more of your story here. I wish you the best of luck.

  • http://www.demyelination.net Rob

    I hope you like the site and my story gives you some inspiration.
    Its nice to compare how demyelination has affected other peoples lives too.
    I hope you will share more of your story here. I wish you the best of luck.