FAQ About Demyelination

Absolutely not, I'm liking proof. You can die from complications though. If you don't let it keep you from being active. You will have a normal life expectancy.

First make sure you have the right doctors, do you trust that they are competent? (I say doctors because when I was in the hospital they had a whole team of doctors.) If they weren't able to stop the demyelination then I would of died. What stopped my demyelination was apheresis or plasma exchange. Make sure your doctors are at least aware of it and take it in to consideration. The sooner they can stop the demyelination the better. Demyelination of the brain is extremely disabling, I myself am dealing with demyelination of the brain and spinal cord and will struggle with it for years to come. I was never definitively diagnosed. One person you can talk to is http://drjsoriano.com/ she is not a neurologist but may give you some direction for the complications. Other than that may god be with you. Its a tough road. Be strong.

Demyeliation in multiple sclerosis occurs over years and is very slow and relentless. In my case it was very rapid, my decline happened happened in only a couple of months. The only way to measure demyelination is by MRI. I cannot explain why you felt tingling, usually immunosuppressants are used to stop Demyelination caused by an autoimmun disease.

The progression will depend on the disease, if it's MS then it will likely progress. In MS there are periods of recession. But one things for sure you'll notice when the demyelination stops. As for symptoms it depends on where in the brain the lesions are.

The best thing Would be to get informed
List out ur questions so ur prepared for when u see your specialist
The specialist won't give u much time so if you have a list of questions in front of you, you wont forget anything.

For MS there's lots of treatments, but for straight demyelination there are none, I can suggest that you have a good diet and take lot of omega3. the doctor may try to treat some individual symptoms but over all there's no treatment for demyelination.

My advice would be to do some research and be active on the forums because your Doc obviously isn't answering your questions. It's a difficult thing to go through and no one can sumup exactly what to do in a couple of sentences. Take care

Absolutely, any neurologist that specializes in multiple sclerosis has tons of expierence with demyelination. As for life expectancy, it will only affect it as long as u keep active. As long as you do as much as you can, wile you can. But if you become bed ridden then that's when it can affect your life expectancy. Even if your severely disabled, if you are able to raise you're heart beat for twenty minutes a day, (in bed, by breathing heavy or arm exercises) it shouldn't effect how long you'll live.

A demyelinating disease is any condition that results in damage to the protective covering (myelin sheath) that surrounds nerves in your brain and spinal cord. When the myelin is damaged, nerve impulses slow or even stop, causing neurological problems.

A demyelinating disease is any disease of the nervous system in which the myelin sheath of neurons is damaged. This impairs the conduction of signals in the affected nerves, causing impairment in sensation, movement, cognition, or other functions depending on which nerves are involved. Also called poor nerve conduction.

You should see your neurologist right away. Is it progressive demyelination (MS)? If so it will most likely get worse. You should do what you can while you can (assuming you don't have headaches). And keep truckin, there's no doubt about it demyelination is a tough recovery.

Demyelination can happen in the healthiest of people because in my case was caused by an autoimmune disease, that's where your immune system over reacts and starts fighting your own body as well as the virus. And I don't have MS, so it's not always linked to MS. It came on very quickly for me, but my recovery is very slow. I am proving demyelination is definitely not permanent, even though some doctors say otherwise.